The morning of my son's death I heard a voice in my head saying, clearly, "When I die, write my book and call it "A Life Worth Living." I knew it was my son. What I didn't know was that he was in the process of dying.
Rachman was born profoundly disabled, not expected to survive birth. He lived a massive 19 years. If I'd known he was going to live when I was pregnant I would have worried that I wasnÕt going to manage such a special needs child. As it happens I didn't know he was going to live and I am so glad that I chose to have him.
Yes, chose, because when an ultrasound showed his deformed head the Doctor immediately offered me a 'termination'. Had I chosen the termination I would have missed knowing such a beautiful soul. My life has been deeply enriched by our relationship and the journey we shared. His life taught me that all life is valid.