Marfan Stories from the Heart

Marfan Stories from the Heart

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Stories from the Heart is a collection of essays about the life journeys of people within the Marfan and related disorders community. Marfan syndrome is a genetic, connective tissue disorder that primarily affects the heart, eyes, and skeletal system. These stories reflect the positivity and strength of those facing the challenges with living with Marfan syndrome and other related disorders.
All proceeds from the sale of this book will be donated to the Marfan Foundation.