The Epidermolysis Bullosa Medical Tracker is aimed to empower parents and patients with Epidermolysis Bullosa to manage their health information effectively and advocate for their well-being.
This planner features sections for tracking various medical appointments, including dental and vision visits, along with space for notes. It also includes sections for listing medications, their dosages, and schedules, as well as tracking blood and lab tests. You'll find pages for recording doctors' and specialists' information, managing insurance and medical expenses, and organizing hospital and surgery details. Additionally, it offers areas for tracking diet, vitamins, and weight, as well as an immunization and allergy chart. The planner also includes space for caregiver instructions, setting health goals, and jotting down general notes.
In the Notes section, I recommend including personal tips for maintaining skin health, strategies for avoiding triggers, and managing daily activities. You can also jot down the results of any genetic testing you've undergone.
For the Treatment section, feel free to include details about your ongoing treatments and therapies. This can include your wound care routines, the types of dressings you use, and any changes in your treatment plans.